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Transforming Lives Through Compassion, Care, and Commitment
Transforming Lives Through Compassion, Care, and Commitment
Since 1991, the National Thalassemia Welfare Society has been India’s leading voice in thalassemia care, prevention, and patient advocacy. Together, we’re building a future where every thalassemia patient receives world-class treatment with dignity and hope and compassionate support.
Our Mission
We exist to ensure that every individual affected by thalassemia receives optimal treatment, comprehensive support, and the dignity they deserve. Through education, advocacy, and direct patient assistance, we’re not just treating a Disorder—we’re nurturing dreams and preserving futures.
Our Vision
At India where thalassemia is preventable, treatable, and no longer a barrier to living a full, vibrant life. We envision a coordinated healthcare ecosystem where awareness translates into prevention, and every patient has access to life-saving treatment regardless of their economic circumstances.
What is Thalassaemia ?
Thalassemia is an inherited blood disorder that affects the body’s ability to produce hemoglobin and red blood cells. Patients require regular blood transfusions to maintain healthy hemoglobin levels and lead active lives. A Thalassemia Warrior has to spend Rs. 5000 to 15,000 per month to sustain.
About NTWS
Three decades of hope for Thalassaemia families
The National Thalassemia Welfare Society has been dedicated to the benefit of Thalassemic patients and its prevention since 1991. From transfusion support to nationwide prevention drives, we walk alongside every warrior and their family.
1991
Founded to serve Thalassaemia patients and drive prevention.
2000s
Expanded blood donation camps and medicine distribution.
Today
A nationwide network supporting thousands of warriors.
Testimonials
What Our Clients Say
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Leroy Lawson
Ceo, L&L
What we do
Our Services & Resources
“From awareness and prevention to treatment support and community initiatives, NTWS is committed to improving the lives of thalassaemia patients and their families.”
What is Thalassaemia?
Learn about the disease, its causes, symptoms, diagnosis, and prevention. Early awareness saves lives.
Treatment Support
Explore the medical assistance, counselling, blood transfusion support, and chelation therapy services offered by NTWS.
Sponsor a Child for Cure
Help a child receive life-changing treatment by sponsoring advanced medical care and stem cell transplantation.
Our Journey Since 1991
Milestones That Made History
Explore the journey of National Thalassemia Welfare Society. Select a year to discover the milestones and achievements.
1991
Our Historical Milestone
The Beginning of NTWS
- National Thalassemia Welfare Society (NTWS) came into existent under the guidance of Dr. VP Choudhry, Professor of Hematology AIIMS to shoulder the sufferings of thalassemia families.
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- National Thalassemia Welfare Society (NTWS) came into existent under the guidance of Dr. VP Choudhry, Professor of Hematology AIIMS to shoulder the sufferings of thalassemia families.
- National Thalassemia Welfare Society (NTWS) started publishing National Thalassemia Bulletin containing important Articles and News. The Bulletin was circulated to Thalassemia Patients and Doctors.
- Clinical meetings were held at AIIMS, Delhi
- In response to NTWS initiation, the price of Desferal Injection was reduced from Rs. 410 to Rs. 290 per box.
- Articles published in premier National Dailies Hindustan Times & Nav Bharat Times.
- A new 6 Bedded Day Care Centre established at AIIMS, Delhi on 14th November’ 1992.
- In its outreach programme started organizing check-up camps beyond boundaries
- Started recognizing outstanding Thalassemia Warriors by honouring them for their performances in any field specially education.
- NTWS was instrumented in upgrading the Thalassemia Unit at NDMC Hospital, Delhi and a service was created where each patient does not have to go to Red Cross to fetch blood
- NTWS started distributing Leukocyte Filters, Infusion Pump and SV set at economically rate.
- In response to NDMC Workers strike NTWS interacted with the authorities and got new Thalassemia Ward at DDU Hospital, Delhi and calling off NDMC strike.
- Organized a lecture on Bone Marrow Transplantation (BMT) at Ganga Ram Hospital, Delhi with Dr. Mammon Chandy, Head Haematology, CMC Vellore, who pioneered BMT in India
- A clinical meeting with International Faculty was organised on 18th February’ 1993. Prenatal Diagnosis in Thalassemia by Dr. J.M. OLD, C.V.S. Sampling by Dr. M.J. Whittle, Gene Therapy by Dr. J.M. Connor.
- Organized 1st National Thalassemia Conference which was also 1st of its kind in India
- Lead the crusade to unite all thalassemia societies of India and created Federation of Indian thalassemics.
- Organized a symposium at AIIMS, where world’s first oral iron chelator Deferiprone was launched in India. The only drug first launched in India and later in UK, USA or Europe. The inventor of the deferiprone molecule George J. Kontoghiorghes, who designed, synthesized, and screened the drug was present on the occasion. It was also inaugurated by Dr. SK Kakkar, Director. AIIMS, Delhi. It was attended by Chairman and Managing Director of Cipla, Dr. Y.K. Hamed and Director Cipla Mr. Harish Chawla.
- NTWS initiated Dr B.N Dara Award to an Indian Medical Professional for dedicated work in the field of Thalassemia. NTWS started special Thalassemia Check-up Clinic on 2nd Sunday of every month at Lajpat Bhawan, Lajpat Nagar, New Delhi. First Dr. B.N Dara Award was conferred to Dr. Mammon Chandy, Head Haematology, CMC Vellore, who pioneered BMT in India.
- NTWS started publishing a National Thalassemia Bulletin on behalf of Federation of Indian Thalassemics which is distributed free of cost to Thalassemia Patients & Doctors of all over India.
- NTWS was instrumental in creating a new Thalassemia Society in Jammu & Kashmir.
- NTWS organized 2nd National Thalassemia Conference, Care & Control.
- NTWS bagged Best NGO award for its Excellent Services in Perfect Health Mela organised by Govt. of NCT, Delhi and Heart Care Foundation of India.
- NTWS launched patients Support Programme by giving subsidized/free kelfer and Blood Filters.
- NTWS under the banner of FIT organized a Workshop on Safe Blood Supply in collaboration with National AIDS control organization on 7th December’ 1998. The impact of this Workshop was that Delhi Govt. started giving Hep C screened blood to Thalassemia patients much before it was made mandatory by the Supreme Court.
- A New Thalassemia Ward was opened at Mata Chanan Devi Hospital in association with NTWS. It was inaugurated by the then Hon’ble Health Minister of Delhi Dr. Ashok Walia in presence of Mahashay Dharam Pal ji Chairman of the Hospital.
- NTWS contributed Rs. 2 Lakh towards 1st Bone Marrow Transplant for Thalassemia Patient at AIIMS, Delhi.
- NTWS under the banner of FIT organized march against Thalassemia in Delhi. Thalassemia Societies from Odisha, J&K, Chandigarh, Hyderabad, Hisar joined to create Awareness on Thalassemia.
- NTWS got free medicines supply (Kelfer & Desferal) for Thalassemia patients in Delhi Govt. Hospitals.
- NTWS contributed Rs. 3.25,000 towards Bone Marrow Transplant of Akshita at AIIMS, Delhi.
- 27 minutes documentary “CHETNA” on Thalassemia Awareness was created by NTWS with financial support from Delhi Govt. It was released by Hon’ble Health Minister of Delhi Dr. Ashok Walia. During inauguration of 4th National Thalassemia Conference free CDs were distributed among the participants and sent to all various Thalassemia Societies all over India.
- NTWS in associated with GB Pant Hospital screened over 300 Thalassemia Patients for Hep B and Hep C.
- Around 700 Patients with Parents enjoyed free rides and water games at Appu Ghar at free of cost.
- NTWS got sale Tax exemption in Delhi on Kelfer.
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